Motor Neurone Disease (MND) (Guidelines)

Follow RCGP red flag diagnosis tool.  If there are any red flag signs please refer to Neurology via letter.

Once a patient is diagnosed via neurology the Neurologist refers to MND Specialist Nurse and onward referral is made to Respiratory, Nutrition & Dietetics, Palliative Care, and Neuropsychology.

Each patient will require individualised management as guided by the MND Specialist Nurse. (andrew.bethell@nhs.scot).

MND Specialist Nurse will provide self management advice.

Every year, around 200 people in Scotland are diagnosed with Motor Neurone Disease (MND). This terminal, untreatable progressive neurological condition typically has a prognosis of 2 years from diagnosis to death and although generally the person’s cognition is preserved, they become trapped in a failing body and lose the ability to move, speak, eat or drink, and ultimately to breathe.
In order to maximise the person’s quality of life, prompt diagnosis and referral is imperative so that the person with MND and their family can access the most appropriate support and help in order to minimise suffering and distress and to allow them to plan for their end of life.

• Motor neurone disease: assessment and management (Nice Guideline NG42)
• MND Scotland 
• MND Association

• MND Scotland
• MND Association
• MySelf-Management | Highland, Scotland