We are pleased to advise that deep linking capability, enabling users to directly download individual mobile toolkits, has now been released on the RDS mobile app. When you install the update, you will see that each toolkit has a small QR code icon the header area beside the search icon – see screenshot below. Clicking on this icon will open up a window with a full-size QR code and the alternative of a short URL for sharing with users. Instructions are provided.
You may need to actively install the update to install RDS app version 4.7.1 to see this improvement. Installing this update is also strongly recommended to get the full benefits of the new contingency arrangements – specifically, that if the RDS website should fail, you will still be able to download new mobile app toolkits.
To check your current RDS version, click on the three dots bottom right of the RDS app screen. This takes you to a “More” page where you will see the version number. To install latest updates:
On iPhones – go to the Apple store, click on your profile icon top right, scroll down to see the apps waiting to be updated and update the RDS app.
On Android phones – these can vary, but try going to the Google Play store, click on your profile icon top right, click on “Manage apps and device”, select and update the RDS app.
Please get in touch with ann.wales3@nhs.scot with any questions.
The patient and their parents/carers will be invited to an SDR clinic appointment to discuss surgery and the inpatient stay.
There will be an opportunity for the family to meet clinicians who will involved in their care and ask questions. Any operative risks will be discussed. We also use this opportunity to discuss patients goals and expectations following the SDR procedure.
A pre-op physiotherapy assessment will be arranged once a date for surgery is set. Videos and measurements forms the mainstay of this assessment.
Patients will normally be admitted on the day prior to surgery.
Neurosurgical review with the surgical team
Gait Analysis
Gait Analysis or physiotherapy assessments will be carried out at regular agreed intervals after surgery and are patients are usually followed up until they leave children services and transition into adult services.
This can help to focus problem solving if changes during development occur to the child.
Local physiotherapy Assessments
Local CPIPs annually by local therapists will be carried out as normal.
Will be carried out again 6 months after surgery along with:-
Other tests may be used where appropriate.
The local MDT SDR team will receive feedback from some of the above assessments in order to evolve their informed decisions in relation to the service.
Children who have had SDR surgery are likely to need Ankle Foot Orthotics (AFOs) after surgery.
As part of the inpatient journey SDR patients will be seen by an orthotist from the hospital who will assess the child's current orthoses. If replacements are required a plan will be made to provide new AFOs and this will be arranged by the orthotic team.
The child may also require resting ankle splints (off the shelf heel pressure relieving AFOs) and knee gaiters. These will also be provided if required.
Ongoing orthotic care will be by the child's local services following surgical discharge.
Selective Dorsal Rhizotomy - SDR