Useful links to resources for healthcare professionals

Useful Supporting Resources for Healthcare Professionals

Accessing financial assistance

Macmillan Money Matters (cancer only) Getting the support you need (macmillan.org.uk)

SR1 or old DS1500 (12 month prognosis, not including Scotland) The ‘Special Rules’: how the benefit system supports people nearing the end of life - GOV.UK (www.gov.uk)

Guidance on the Implementation of Benefits Assessment under Special Rules in Scotland (BASRiS) Guidance and form for Terminal Illness, for Disability Benefits devolved to Scotland

BASRiS or SR1 (Scotland only) Social Security Scotland - When to complete a BASRiS, SR1 or a DS1500 form

Citizens Advice (benefits check service) Benefits - Citizens Advice

 

Acute oncology

SINS risk of instability in metastatic cord compression Clinical version: Spinal Instability Neoplastic Score (SINS) | QxMD

MIRELS (prophylactic fixation criteria in bone metastases Mirels Score - Criteria for Prophylactic Fixation (Calculator) (mdapp.co)

MASCC neutropenic sepsis MASCC Febrile Neutropenia Risk | QxMD

Acute oncology UK guidelines  https://www.ukacuteoncology.co.uk/information-hub/ao-guidelines 

 

Autism

Palliative and end of life care for autistic people (autism.org.uk)

Peaceful, pain free and dignified: palliative and end of life care for people on the autism spectrum A guide for social care practitioners | bild

More-than-words-supporting-effective-communication-with-autistic-people-in-health-care-settings-3.pdf (england.nhs.uk)

Health & Behaviour | Autism Spectrum Disorders (ASDs) (scot.nhs.uk)

 

Bereavement

Good Life, Good Death, Good Grief

Muslim Bereavement Support Service Muslim Bereavement Support Service (mbss.org.uk)

 

Child bereavement support

Child Bereavement UK

Winston's Wish - giving hope to grieving children (winstonswish.org)

 

CJD symptom management

Symptomatic treatment | National Prion Clinic - UCL – University College London

 

Conversion calculators

Pregabalin : gabapentin conversion calculator Switching between gabapentin and pregabalin for neuropathic pain – SPS - Specialist Pharmacy Service – The first stop for professional medicines advice

Opioid conversion calculator SPOT - Opioid Calculator on the App Store (apple.com)

Benzodiazepine conversion calculators

Benzodiazepine Equivalents Conversion Calculator - ClinCalc.com

Benzodiazepine Conversion Calculator (mdcalc.com)

Steroid conversion Steroid Conversion Calculator (mdcalc.com)

 

Parkinson’s disease and poor swallow

Professional information: SPS parkinsons disease medicines swallowing difficulties

Rotigotine conversion calculator "Nil by mouth" medication dose calculators and guidelines | Parkinson's UK (parkinsons.org.uk)

Rotigotine conversion calculator Home | PDMedCalc

 

Dementia

End of life digital FINAL (wordpress.com)

 

Drugs and driving

Scotland healthcare professional- Drug+driving+-+guidance+for+healthcare+professionals.pdf (www.gov.scot)

Scotland patient information - Drug+driving+rules+explained+-+leaflet.pdf (www.gov.scot)

 

Elderly care and frailty

BGS guidelines on end of life care in frailty 

Rockwood Clinical Frailty Score: rockwood_cfs.pdf (bgs.org.uk)

 

English as a second language    

Guide to supporting people with limited English in palliative care

Faith communities

NHSGGC Faith and Belief Communities Manual, handy for key information regarding spiritual care aspects of patient care including views on death and dying and post-death arrangements

Muslim Bereavement Support Service About Us - Muslim Bereavement Support Service (mbss.org.uk)

Culturally sensitive prescribing of common symptom management drugs 

 

Future care planning

Patient information (Scotland)

Planning ahead Future care planning | NHS inform

Legal and practical issues (Will, Power of Attorney, Guardianship etc) Legal and practical issues | NHS inform

Planning for treatment choices in a future emergency ReSPECT | Resuscitation Council UK

Motor neuron disease

Future care planning for people living with motor neuron disease (NHS Fife)

Hearing Impairment

RNID in Scotland - RNID

 

Learning Disability

Resources « PCPLD Network – Palliative Care of People with Learning Disabilities Network

 

Low vision

Sight Scotland. Educating & Supporting People With Vision Loss

 

Medicines information resources

Medicines information | The Knowledge Network Scotland. Requires an NHS Scotland networked computer or Scottish OpenAthens account

Top tips for health and social care professionals on palliative care medication

 

Mouth Care

Professional information Home - Mouth Care Matters (hee.nhs.uk)

Royal College of Nursing guideline Mouth Care Matters in End-of-Life Care | Publications | Royal College of Nursing (rcn.org.uk)

 

Nutrition

Food first patient information leaflet - Food First/Food Enrichment | BAPEN

Hospice UK Healthcare professional nutrition CPD 

Pancreatic Enzyme Replacement patient information leaflet 

 

Paediatric Palliative Care

APPM Formulary – APPM Master Formulary

Paediatric patient information leaflets - Leaflets – Medicines For Children

Children’s Hospice Association Across Scotland - Children's Hospices Across Scotland | CHAS

National Managed Clinical Network: PELiCaN Paediatric End of Life Care Network PELiCaN – Paediatric End of Life Care Network (nhs.scot)

Together for Short Lives  Together for Short Lives: Children's Charities - Children Hospices 

ICPCN Improving Palliative Care for the World’s Children  

Royal Hospital for Children Glasgow Paediatric Supportive and Palliative Care Clinical Guidelines pages  Paediatric Supportive & Palliative Care (scot.nhs.uk)

Association of Paediatric Palliative Medicine (main website page not just formulary link) Home | Association for Paediatric Palliative Medicine (APPM)

European Association for Palliative Care Children and Young People's Reference Group, EAPC Palliative Care for Children & Young People - EAPC (eapcnet.eu)

 

Pain and Symptom assessment scales

Identifying a patient in need of a palliative approach

The SPICT™ – SPICT “SPICT™ is used to help identify people with deteriorating health due to a new serious illness, one or multiple health conditions, or frailty in older age so they benefit from holistic assessment, future care planning (advance/anticipatory care planning) and a palliative approach to care.” 

GSF Proactive Identification Guidance to support earlier identification of patients nearing end of life  

 

General pain scales

Outcome_Measures_January_2019.pdf (britishpainsociety.org)

LANSS Scale for Neuropathic Pain Questionnaire Calculator (thecalculator.co)

 

Pain scales in cognitive impairment

DisDAT  https://www.stoswaldsuk.org/how-we-help/we-educate/education/resources/distress-and-discomfort-assessment-tool-disdat/

Doloplus - https://www.doloplus.fr/en/the-doloplus-scale/

Abbey - attachment-3-abbey-pain-scale.doc (live.com)

 

Palliative Care Formulary “PCF” + Compatibility Checker Access

The Knowledge Network Scotland - The Knowledge Network: Scotland's source of knowledge for health and care – requires an NHS Scotland networked computer or Scottish OpenAthens account

Palliative Care Guidelines Plus (pallcare.info) – open access compatibility checker

 

Information for patients, carers and members of the public

Dying for Beginners - an animated video describing the process of dying. It could be used to help explain the process to a patient or relative. Created by Dr Kathryn Mannix. 

All patient information leaflets not relating to medications: Palliative care | NHS inform

Hiccups Hiccups - NHS (www.nhs.uk)

 

Pregnancy and breastfeeding

Advice on prescribing in pregnancy and lactation is available via the Knowledge Network Scotland - requires NHS Scotland networked computer or Scottish OpenAthens account

Drugs during pregnancy and lactation: treatment options and risk assessment 3rd ed 2015 (eBook) 
Reference for staff covering fertility, pregnancy, lactation, child health and human genetic specialties.

Briggs Drugs in pregnancy and lactation 12th ed (eBook) 
A reference guide to fetal and neonatal risk

 

Prescribing within dietary requirements

Culturally sensitive prescribing of common symptom management drugs 

 

Post traumatic stress disorder 

PTSD and the last days of life: Clinical Considerations for PTSD in Palliative or Hospice Care

Grounding techniques

 

Scoring Systems

Assessing risk of alcohol misuse

CAGE CAGE Alcohol Abuse Screening Tool - Pedagogy Education

 

Assessing risk of substance misuse

CAGE-AID CAGE-AID Substance Abuse Screening Tool - Pedagogy Education

SOAPP-SF I-SOAP (slu.edu)

SOAPP-R SOAPP-R tool - UpToDate

 

Substance misuse - withdrawal

Alcohol withdrawal CIWA-Ar for Alcohol Withdrawal (mdcalc.com)

Opioid withdrawal COWS Score for Opiate Withdrawal (mdcalc.com)

Benzodiazepine withdrawal Benzodiazepine Withdrawal Scale (CIWA-B) (unc.edu)

 

Tissue Donation

Home | Organ Donation Scotland

 

Tools

Severity of liver failure Child-Pugh Score for Cirrhosis Mortality (mdcalc.com)

Corrected QT Corrected QT Interval (QTc) (mdcalc.com)

Corrected calcium Calcium Correction for Hypoalbuminemia (mdcalc.com)