- Initial 6 month visit at Beatson
- Follow up schedule
- 6 monthly prostate-specific antigen (PSA) check for 5 years then annual to 10 years telephone/letter review.
Patient has access to CNS team via direct telephone number.
Welcome to the Right Decision Service (RDS) newsletter for October 2024.
Development of the contingency solutions to maximise RDS resilience and minimise risk of future outages is in progress, aiming for completion by Christmas. As a reminder, these contingency arrangements are:
In the meantime, a gentle reminder to encourage users to download essential clinical toolkits to their mobile devices so that there is an offline version always available.
A new scheduled deployment with minor improvements drawn from support tickets, externally funded projects, information related to outages, and feature requests will take place in early December. Key improvements planned are:
We are also seeking approval to use the NHS Scotland logo and title for the RDS app on the app stores to help with audience engagement and clarity around the provenance of RDS.
We are still hopeful that user acceptance testing for at least the Search and browse enhancements can take place before Christmas. Thank you for your patience and understanding in waiting for these improvements. Timescales have been pushed back by old app migration challenges, work to address outages, and most recently implementing the contingency arrangements.
We are aware that there continue to be some issues around a number of RDS support tickets, in part due to constraints around visibility for the RDS team of the tickets in the existing support portal. We are investigating the potential to move to a new support ticket requesting system from early in the new year. We will organise the proposed webinar around support ticket processes once we have confirmed the way forward with the system.
There is a known issue with alterations in formatting of some RDS tables which seems to have arisen as a result of the 17 October deployment. Tactuum is working on a fix and on implementing additional regression testing to prevent this issue recurring.
Recently launched toolkits include:
NHS Lothian Infectious Diseases
Scottish Health Technologies Group – Technology Assessment recommendations
NHS Tayside Anaesthetics and Critical Care projects – an innovative toolkit which uses PowerAutomate to manage review and response to proposals for improvement projects.
If you would like to promote one of your new toolkits through this newsletter, please contact ann.wales3@nhs.scot
A number of toolkits are expected to go live before Christmas, including:
We have had a good response to the recent invitation to sign up to the new Teams channel for RDS editors. This provides a forum for editors to share learning, ideas and questions and we hope to hold regular webinars on topics of interest. The RDS team is in the process of joining participants to the channel and we’d encourage all editors to take part, using the registration form – available in Providers section of the RDS Learning and Support area.
The RDS team has worked with colleagues in NHS Grampian and the Digital Health & Care Innovation Centre to evaluate the impact of the Prevent the progress of diabetes web and mobile app in a small-scale pilot project. This app provides access to local and national resources and services targeted at people with prediabetes, a history of gestational diabetes, or candidates for remission. After just 8 weeks of using the app, 94% of patients reported increased their knowledge and understanding of diabetes, and 88% said it had increased their confidence and motivation to make lifestyle changes, highlighting specific behaviour changes. The learning from this project is informing development of a service model based on tailored support for patient groups with, high, medium and low digital self-efficacy.
Please contact ann.wales3@nhs.scot if you would like to know more about this project.
To book a place, please contact Olivia.graham@nhs.scot, providing your name, organisation, job role, and level of experience with RDS editing (none, a little, moderate, extensive.)
To invite colleagues to sign up to receive this newsletter, please signpost them to the registration form - also available in End-user and Provider sections of the RDS Learning and Support area. If you have any questions about the content of this newsletter, please contact his.decisionsupport@nhs.scot If you would prefer not to receive future newsletters, please email Olivia.graham@nhs.scot and ask to be removed from the circulation list.
With kind regards
Right Decision Service team
Healthcare Improvement Scotland
The Right Decision Service: the national decision support platform for Scotland’s health and care
Website: https://rightdecisions.scot.nhs.uk Mobile app download: Apple Android
Patient has access to CNS team via direct telephone number.
Low risk CPG 1 | PSA <10 and | Gleason 6 | T1 or T2a disease |
Intermediate risk CPG 2 | PSA <20 | Gleason 7 (3+4) | T1/T2a/b |
High risk CPG 2 | PSA <20 and/or | Gleason 6 or 7 (3=4=7) and/or | T2c |
All cases will be reviewed in MDT and agreed if Active Surveillance is an appropriate option.
The CNS will discuss treatment options with patients, ensuring the patient has a good understanding of the principles of Active Surveillance. The nurse will provide written information +/- signpost to validate online support (Prostate Cancer UK). This information can be accessed by the patient and their family. All patients will be provided with contact details for the specialist nursing team.
Year 1 | 4 monthly PSA* | |
Year 2 | 6 monthly PSA* | 12 month MRI scan* |
Year 3-10 | 6 monthly PSA* | Year 4 MRI |
*Assess if active surveillance remains appropriate - consider radical treatment/watchful waiting.
If MRI confirms disease progression +/- a continual rise in PSA. The CNS would request radiology staging investigation as per the local protocol. Following the completion of required investigation the nurse specialist will request for the case to be discussed in the local Urology MDT. A consensus will be sought regarding appropriate further management options. The nurse specialist will update the patient regularly.
All patients will have direct contact details for CNS team should they have any concerns between visits.
Review patient in clinic/telephone at time of developing relapsed disease. Discuss disease status and further treatment options. Consider rescanning and discussion in MDT if the patient has a good performance status and wishing to consider salvage treatment.
If not suitable or the patient does not wish to be considered for salvage treatment the following follow up schedule is advised.
*Consider Discharge if it becomes evident that the patient is unlikely to benefit from regular PSA checks. Example: increased comorbidities where it is evident that hormone therapy would only be considered if the patient is symptomatic - Discharge to GP with advice that hormone therapy could be commenced on basis of symptom progression.
All patients will have direct contact details for CNS team should they have any concerns between visits.
Consider Discharge if it becomes evident that the patient is unlikely to benefit from regular review. Example: increased comorbidities where it is evident that systemic treatment/palliative radiotherapy would only be considered if the patient is symptomatic - Discharge to GP with advice that further treatment could be considered on basis of symptom progression. Provide details for Patient Initiated Review.
All patients will have direct contact details for CNS team should they develop symptoms of concern – Patient Initiated Review.
Consider Discharge if it becomes evident that the patient is unlikely to benefit from regular PSA checks. Example: increased comorbidities where it is evident that systemic treatment/palliative radiotherapy would only be considered if the patient is symptomatic - Discharge to GP with advice that further treatment could be considered on basis of symptom progression. Provide details for Patient Initiated Review
If PSA progression (PSA doubling time <6months) or symptom progression consider CT + Bonescan and arrange discussion in local MDT.
All patient will have direct contact details for CNS team should they have any concerns between visits.
Consider Discharge if it becomes evident that the patient is unlikely to benefit from regular PSA checks. Example: increased comorbidities where it is evident that systemic treatment/palliative radiotherapy would only be considered if the patient is symptomatic - Discharge to GP with advice that further treatment could be considered on basis of symptom progression. Provide details for Patient Initiated Review
If PSA progression (PSA doubling time <6 months) or symptom progression consider CT + Bonescan and arrange discussion in local MDT.
Review in Consultant Oncology clinic / Non Medical Prescribing clinic.
All patients will have direct contact details for CNS team should they have any concerns between visits.