Specialist Learning Disability Services

Picture of a young lady sitting at a laptop with headphones

Human impact story perspective: citizen, patient

Marie is a young lady with a learning disability who was living at home with her mother when the pandemic began. She lost all of her social activities and was terrified of dying from COVID-19. Marie had been due to move into her own supported accommodation before the pandemic. This had to be put on hold, but she didn’t understand why, and blamed herself. Marie became increasingly anxious and low in mood, and by the time her mother contacted Specialist Learning Disability Services, she was not sleeping or leaving the house.

Marie was diagnosed with clinical depression and started treatment. Because Marie had Down syndrome, she was at high clinical risk from COVID-19 and that meant that every face-to-face contact put her at risk. Marie found it hard to express how she was feeling on the telephone, it was not possible to offer assessment or support by telephone.

After an initial face to face visit Marie, her mother and the Learning Disability Team were set up to use NearMe video consultation. This worked really well for Marie. She was comfortable talking over video consultation and the healthcare professional was also able to assess her mental health. Appointments were arranged via email with Marie’s mother, and the healthcare professional was able to coordinate times that worked around both of their diaries.

As the pandemic progressed, video consultation was gradually augmented by increased face to face contact with Marie, but the patient’s mother still found it easier to meet using video consultation. Marie was finally able to move into her own new home, and Microsoft Teams video was used to conduct multidisciplinary meetings between Marie, her mother, Psychiatry, Learning Disability Nursing, Psychology, Occupational Therapy, Social Services and her new support team. Marie is now on long term treatment and is no longer feeling depressed and anxious. Marie remains under review by the Learning Disability health team, and they are choosing to use a combination of video consultation, email and face-to-face contact.