Experiences of postdiagnostic support | Right Decisions

Right Decisions
Assessment, diagnosis, care and support for people with dementia and their carers (SIGN)
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Postdiagnostic support
Experiences of postdiagnostic support

Please update your RDS mobile app to version 4.7.1

We are pleased to advise that deep linking capability, enabling users to directly download individual mobile toolkits, has now been released on the RDS mobile app. When you install the update, you will see that each toolkit has a small QR code icon the header area beside the search icon – see screenshot below. Clicking on this icon will open up a window with a full-size QR code and the alternative of a short URL for sharing with users. Instructions are provided.

You may need to actively install the update to install RDS app version 4.7.1 to see this improvement. Installing this update is also strongly recommended to get the full benefits of the new contingency arrangements – specifically, that if the RDS website should fail, you will still be able to download new mobile app toolkits.

To check your current RDS version, click on the three dots bottom right of the RDS app screen. This takes you to a “More” page where you will see the version number. To install latest updates:

On iPhones – go to the Apple store, click on your profile icon top right, scroll down to see the apps waiting to be updated and update the RDS app.

On Android phones – these can vary, but try going to the Google Play store, click on your profile icon top right, click on “Manage apps and device”, select and update the RDS app.

Please get in touch with ann.wales3@nhs.scot with any questions.

Attitudes and beliefs around dementia

Service providers should provide postdiagnostic support that is co-ordinated between services, meets the needs of people with dementia and their carers and encourages their engagement with services.

Service providers should consider carers’ preferences for psychosocial support and education.

Service providers and health and social care providers should consider and address stigma and how the person with dementia and their carer(s) view the illness and options for care, based on their knowledge, experience and cultural beliefs, to encourage health-seeking behaviours and uptake of care and services

Postdiagnostic support should be available throughout all stages of the disease, and in all settings, aligned to the needs of the person with dementia or their carers.

Professionals should be aware of the important relationship and interlinked needs of the person with dementia and their carer(s) and should consider whether relationships are positive, supportive and equitable.