Rheumatology and bone disease

Services

The Borders rheumatology service aims to offer a comprehensive diagnostic and shared care therapeutic service for people with inflammatory arthritis, connective tissue disorders, vasculitis and other less common rheumatological conditions. An email advise service (Rheumatology Advice) is provided to GPs to discuss patients whose symptoms may or may not require a formal referral to the Rheumatology consultant clinic and for clinical advice regarding existing patients.

The Osteoporosis service provides high quality, personalised, evidence based DEXA scan reports and arranges follow-up DEXA scans where needed, provides counselling and administration of parenteral treatments for osteoporosis where indicated and a fracture liaison service as part of secondary fracture prevention.

The rheumatology team:

Consultant Rheumatologists - Dr Ruth Richmond (Rheumatology), Dr Adrian Tan (Rheumatology and osteoporosis)

Rheumatology specialist nurses - Malama Sumbwanayambe  and Susan Campbell

Rheumatology secretaries -  Jacqui Daly and Emily  Turnbull

Alex Mundell – rheumatology pharmacist

Osteoporosis specialist nurse – Lindsay Tyszko

Osteoporosis secretary – Emma Thompson

Rheumatology physiotherapist - Mary Crawford

Rheumatology occupational therapist- Nicki Gray

Service availability

The office is manned Monday - Friday 9am-4.30 pm  - except public holidays and unexpected crises.

The rheumatology specialist nurses can provide non-emergency advice on management of disease flares and drug side effects.  They do not provide diagnostic advice or advice on non-rheumatology related issues. Our nurses aim to respond to calls within  5 working days. 

The rheumatology physiotherapist, occupational therapist and pharmacist  are best contacted via the rheumatology office.

Any urgent problems should be communicated directly to the appropriate clinician or by phoning the Rheumatology secretaries using the contact details above.

The osteoporosis inbox provides advice to clinicians for example regarding side effects of bone protective treatments and suitability of switching to parenteral treatments or need for DEXA scanning if there is any uncertainty or issues with requesting a DEXA scan.

About our service

Rheumatology is predominantly an out-patient based service.  We have no dedicated beds or junior staff.     There are no medical or nursing staff available out of hours.

In order to make efficient use of the available clinic capacity all referrals are reviewed by the consultant.   When it is felt that an appointment is not required for diagnosis or a treatment plan a letter may be generated declining an appointment and offering advice.   Other referrals may be directed to physiotherapy (eg joint hypermobility) or to occupational therapy where there is an established rheumatological diagnosis and the request for an appointment is in relation to functional problems, fatigue or significant foot problems.

We aim to be approachable and are happy to discuss problems by telephone or e-mail, and greatly appreciate the willingness of our primary care colleagues to engage in shared care of our patients with long term conditions.  

Rheumatology clinics - Consultant rheumatology clinics are held on Monday morning, Tuesday morning and afternoon and Thursday morning.  There are consultant telephone review clinics on Wednesday morning and Thursday morning.   All face-to-face clinics are held in out-patients H at the Borders General Hospital.   All other clinics are general rheumatology clinics with a mixture of new and review appointments. 

 

Specialist nurses and pharmacy  provide a mixture of early arthritis clinics, biologic clinics, clinics for the initiation of sc methotrexate and routine review of stable patients.

                

Rheumatology Emergencies -  Emergencies include:

  • Suspected septic arthritis - which should be discussed with orthopaedics
  • Serious disease modifying drug toxicity eg neutropenic sepsis, drug induced hepatitis, serious methotrexate pneumonitis
  • Serious new onset or relapse of vasculitis
  • For suspected giant cell arteritis there is a referral protocol to allow early temporal artery biopsy which is available on this site

When available the Consultant Rheumatologists are happy to discuss on the same day possible diagnoses and management where the problem is an urgent one.  However, other clinical commitments mean that advice is not always immediately available.  E-mails are checked daily, and are often the easiest route to access speedy advice - please provide CHI number to allow review of relevant investigations. 

If in doubt about the advisability of continuing a disease modifying therapy stop it.  Patients will not come to harm as a result of missing therapy for a few days.

When the rheumatologist is unavailable and the problem cannot wait, please contact the receiving physician at BGH.  Out of hours, patients requiring admission should be admitted via Medicine or Orthopaedics, as is most clinically  appropriate. 

Osteoporosis clinics – These are provided by the osteoporosis specialist nurse to discuss the findings on DEXA and parenteral treatment where indicated by the DEXA report, and any issues which arise as a result of these treatments. These clinics are also where treatments, for example Denosumab injections, are administered. There is no dedicated consultant led osteoporosis clinic but Dr Tan would be happy to see patients with Paget’s disease of bone and will consider seeing patients with complex osteoporosis on a case by case basis within his Rheumatology clinic. A weekly MDT meeting is held between Dr Tan and the osteoporosis specialist nurse to discuss all matters pertaining to osteoporosis. Complicated/rare metabolic bone diseases, eg osteogenesis imperfecta will require referral to the metabolic bone clinic at the Rheumatic Diseases Unit in Edinburgh.

Who to refer, who not to refer, how to refer

Who to refer:

Rheumatology Emergencies -

  • The acute hot joint - assessment on its merits but septic arthritis and gout are both in the differential diagnosis. In the otherwise well patient who is afebrile consider joint aspiration (if you are able) and send fluid for MCS and also polarised microscopy for crystals, or discuss with the on-call orthopaedic surgeon or rheumatology during routine hours.  For the febrile patient, or patients who are immunocompromised discuss with orthopaedics with a view to assessment and admission if necessary.
  • Sepsis/suspected sepsis in immunosuppressed patients - if the patient appears to have serious infection consider medical admission to hospital - particularly for those patients on biologic therapies or those who are neutropenic and septic
  • Methotrexate pneumonitis - consider this diagnosis in the patient with fever, shortness of breath and dry (usually) cough.  Stopping methotrexate may be sufficient, but patients with hypoxia or severe shortness of breath may require medical admission for investigation and treatment. 

Urgent Rheumatology OPD

  • New inflammatory arthritis - we do like to see these patients early in the course of their disease - but not so early that we cannot give a diagnosis or when the condition may prove to be self limiting or viral.  In general if an episode of true inflammatory arthritis is not settling by 6 weeks you should refer for an urgent appointment.   In the interim treat with NSAIDs (unless contraindicated) and rest.  If you are considering using im depomedrone please discuss first with rheumatology - it can actually result in a delay in achieving a diagnosis and a long term management plan.  Please do not use oral steroids without discussing.   Do ask about other systemic features and check a urinalysis - serious multisystem disease presenting arthritis is not common but is serious and if there is significant blood and protein in the urine may need more urgent investigation.
  • Suspected serious connective tissue disease/vasculitis - new onset of systemic symptoms, often with rash and/or arthralgia or arthritis, with dipstick haematuria and proteinuria, impaired renal function, and usually raised inflammatory markers. A long standing non-specific rash, non-specific aches and pains and a low grade positive ANA is not an emergency

Routine Rheumatology OPD - approximately half of new referral to NHS Borders rheumatology clinics are considered non-urgent. They encompass problems such as:        

  • Long standing arthritis which is felt to be probably non-inflammatory but where there is genuine diagnostic doubt
  • Suspected inflammatory back pain - treatment is initially with NSAIDs and unless there is also peripheral arthritis is not considered an urgent problem
  • Difficult to manage polymyalgia rheumatica
  • Non-specific widespread aches and pains
  • Difficult to manage gout - or suspected gout where there is diagnostic uncertainty
  • Suspected connective tissue disease without evidence of major organ involvement
  • Joint hypermobility

Who not to refer:

All referrals are reviewed by the consultant along with any relevant investigations.   Patients with clear cut soft tissue problems, non-inflammatory back pain, clear cut osteoarthritis should not be referred and will not be offered appointments.  Examples include:

  • Shoulder impingement pain - treat with pain relief, physiotherapy, local steroid injection and consider orthopaedic referral if all of these have failed
  • Lateral and medial epicondylitis - analgesia, physio, consider local steroid injection or refer to the musculoskeletal clinic via orthopaedics
  • Dupuytren's contracture - rheumatology has nothing to offer for this
  • Clear cut osteoarthritis of a single joint where the disease has not yet advanced far enough to consider surgery or where the patient is not fit for surgery - consider local steroid injection or referral to the musculoskeletal clinic if it is a joint that nobody in your own practice can inject
  • Cervical spondylosis, chronic low back pain with no inflammatory features and no neurological features. Management consists of analgesia, exercise and physiotherapy.
  • Primary Raynaud's phenomenon - if no other features of a connective tissue disease (no arthritis, rash, hypertension, abnormal urinalysis) try calcium channel blockers. If this is not successful and there is severe Raynauds associated with digital ulceration we are happy to provide advice on other therapeutic options.
  • Confirmation of fibromyalgia - where patients have multiple symptoms that have been present for months with normal clinical examination and normal investigations the diagnosis can be made in primary care. A specialist opinion is not required to confirm such a diagnosis.  We do not offer appointments to confirm the diagnosis for the benefit of the Department of Work and Pensions.

A link to Royal  College of Physicians guidelines on diagnosis and treatment of fibromyalgia is attached.

The diagnosis of fibromyalgia syndrome | RCP

It is enormously helpful if you can ensure that patients understand that where a referral is made for a rheumatology opinion that a potential outcome may be the provision of advice and that an appointment may not be issued.    It is also helpful if you indicate in the referral letter that you would be happy to receive advice alone.

How to refer:

Rheumatology OPD Referrals

Electronic referral for outpatient appointments, via Sci Gateway, to Medical Records Department.  All referrals are graded appropriately by the Consultant.   

Please include in your letter:

  • The history and objective findings on examination

Re: examination findings, please provide some comments on which joints are involved, whether the joint is swollen/hot/red, and whether the joints are stiff/have restricted movement. It is not necessary to record degree of  restriction. Please also record anything else found on examination that may be relevant e.g. rash, weakness.

  • The results of relevant investigations
  • Current and relevant previous drug history/sensitivity
  • Record of previous illness or surgery
  • Psychosocial history
  • Specific questions that you would like addressed
  • X-rays - state where and when performed - this is particularly important when patients have had films taken in Berwick, as these are not accessible from NHS Borders, and access to these films needs to be requested
  • Copies of relevant correspondence from other hospitals/specialists

Please remember that the priority assigned to your patient and the speed with which they are seen will depend on the quality of the information you provide in your referral letter

Suspected giant cell arteritis – please see relevant page

Alternatives to referral:

e-mail

If the problem can be easily encapsulated in an e-mail the consultant is happy to provide advice by this route.  Please provide CHI number to allow retrieval of any relevant results, and allow us and you,  where relevant, to print and file the correspondence in the patient's case notes.

Rheumatology specialist nurses

The nurse helpline is not for emergency problems.  It is an answerphone service and calls will be returned within 5  working days.

The rheumatology nurses can help to provide advice on managing disease flares in inflammatory arthritis, and management of suspected adverse reactions to disease modifying drugs.  They are not, however, trained in the diagnosis of rheumatological conditions, or the evaluation of unusual symptoms that are unlikely to be related to the patient's arthritis or therapy.   If you have seen the patient with a problem that you are uncertain about, please do not ask the patient to contact the nurses, but do so yourself.  The additional information that you provide is almost always important and invaluable.  Our nurses are more than happy to respond to emails using the contact details at the top if that is most convenient for you.     

Triage of referrals

All referrals are read by the consultant rheumatologist, and may  be offered one of the following:

  • An urgent appointment
    • Strong probability of early inflammatory arthritis
    • Strong probability of a connective tissue disease with concerns about major organ involvement (eg lupus with proteinuria/haematuria)
  • A routine appointment
    • Difficult to manage polymyalgia rheumatica (please give as much information as possible about the symptoms prior to therapy, subsequent course of symptoms in relation to steroid reduction, dose of steroid at which symptoms relapsed)
    • Some symptoms compatible with inflammatory arthritis but either long standing, or low overall probability on the basis of the clinical content of the letter
  • Advice only
    • Insufficient clinical information to allow triage - in which case more information will be requested
    • History and examination, plus investigations suggestive of degenerate disease - where the service has no specific therapeutic interventions to offer
    • Gout - where the diagnosis is not in doubt, but treatment has proved difficult
    • Requests for advice on analgesia - rheumatology has no drugs that are not available to all medical practitioners
    • Joint hypermobility with features of hypermobile EDS only
    • Longstanding fibromyalgia/ME/chronic fatigue

 

Local service details

Editorial Information

Author(s): Dr Ruth Richmond.

Author email(s): rheumatology@borders.scot.nhs.uk.